10027/20708
H.M. Gibbons
H.M.
Gibbons
R. Owen
R.
Owen
T. Heller
T.
Heller
Perceptions of Health and Healthcare of People With Intellectual and Developmental Disabilities in Medicaid Managed Care
University of Illinois at Chicago
2016
health
healthcare
inclusion in research
intellectual disability
2016-06-08 00:00:00
Journal contribution
https://indigo.uic.edu/articles/journal_contribution/Perceptions_of_Health_and_Healthcare_of_People_With_Intellectual_and_Developmental_Disabilities_in_Medicaid_Managed_Care/10753736
This study examined perceptions of health and healthcare of people with intellectual and developmental disabilities (IDD) receiving Medicaid Managed Care. Exploratory, semistructured interviews were conducted with 23 participants. Findings indicate that participants generally expressed being in good health and defined good health as (a) absence of pain, disease, and symptoms; (b) adherence to or not requiring treatment; (c) physical self-care; (d) mental or spiritual self-care; and (e) ability to perform the activities one wants to do. Participants conceptualized healthcare as (a) ensuring needs are met through access to services, (b) obtaining quality services, (c) navigating the healthcare system successfully, and (d) receiving humanizing healthcare. This study has implications for improving healthcare and communications between people with IDD and healthcare providers.