Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions
journal contributionposted on 2021-05-24, 15:43 authored by JR Banas, Susan MagasiSusan Magasi, K The, DE Victorson
There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this disables accessible research practices for PWD, and leads to continued skepticism among PWD regarding the value of participating in research. Finally, we propose solutions to create and maintain a culture of access and inclusion as well as long-term collaborative and equity-focused partnerships.
1/3: The Chicago Cancer Health Equity Collaborative (ChicagoCHEC) | Funder: National Cancer Institute | Grant ID: U54CA203000
CitationBanas, J. R., Magasi, S., The, K.Victorson, D. E. (2019). Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions. Qualitative Health Research, 29(7), 1056-1064. https://doi.org/10.1177/1049732319833361
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qualitative researchquantitative researchhealth researchpeople with disabilitiescommunity-based participatory researchrecruitment and retentionqualitativeliterature reviewNorth AmericanCommunity-Based Participatory ResearchDisabled PersonsHealth Services ResearchHealthcare DisparitiesHumansPersonnel SelectionQualitative ResearchUnited StatesNursingMedical and Health SciencesStudies in Human SocietyPsychology and Cognitive Sciences