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Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions

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journal contribution
posted on 24.05.2021, 15:43 by JR Banas, Susan Magasi, K The, DE Victorson
There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this disables accessible research practices for PWD, and leads to continued skepticism among PWD regarding the value of participating in research. Finally, we propose solutions to create and maintain a culture of access and inclusion as well as long-term collaborative and equity-focused partnerships.

Funding

1/3: The Chicago Cancer Health Equity Collaborative (ChicagoCHEC) | Funder: National Cancer Institute | Grant ID: U54CA203000

History

Citation

Banas, J. R., Magasi, S., The, K.Victorson, D. E. (2019). Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions. Qualitative Health Research, 29(7), 1056-1064. https://doi.org/10.1177/1049732319833361

Publisher

SAGE Publications

Language

en

issn

1049-7323