Banas_2019_QHR_Recruitment and retention of PWD in QHR.pdf (90.52 kB)
Download fileRecruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions
journal contribution
posted on 2021-05-24, 15:43 authored by JR Banas, Susan MagasiSusan Magasi, K The, DE VictorsonThere are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this disables accessible research practices for PWD, and leads to continued skepticism among PWD regarding the value of participating in research. Finally, we propose solutions to create and maintain a culture of access and inclusion as well as long-term collaborative and equity-focused partnerships.
Funding
1/3: The Chicago Cancer Health Equity Collaborative (ChicagoCHEC) | Funder: National Cancer Institute | Grant ID: U54CA203000
History
Citation
Banas, J. R., Magasi, S., The, K.Victorson, D. E. (2019). Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions. Qualitative Health Research, 29(7), 1056-1064. https://doi.org/10.1177/1049732319833361Publisher
SAGE PublicationsLanguage
- en
issn
1049-7323Usage metrics
Categories
No categories selectedKeywords
qualitative researchquantitative researchhealth researchpeople with disabilitiescommunity-based participatory researchrecruitment and retentionqualitativeliterature reviewNorth AmericanCommunity-Based Participatory ResearchDisabled PersonsHealth Services ResearchHealthcare DisparitiesHumansPersonnel SelectionQualitative ResearchUnited StatesNursingMedical and Health SciencesStudies in Human SocietyPsychology and Cognitive Sciences