Latine Mothers' Experiences with Autism: From Early Concerns to Advocacy and School Engagement

This phenomenology-informed study explores the lived experiences of ten Latine mothers navigating their children’s autism diagnoses, support systems, and education. Participants shared their perspectives on the diagnostic process, sources of support, and their evolving role as advocates within their families, schools, and communities. Findings reveal that while mothers persistently sought information and assistance, they often encountered systemic barriers, dismissive interactions with professionals, and a lack of culturally responsive resources. Despite these challenges, they demonstrated resilience, leveraging informal networks, peer connections, and self-education to bridge information gaps and advocate for their children. Their advocacy evolved alongside the support they received, emphasizing the critical role of social support in securing equitable access to education and healthcare. These findings highlight the need for accessible and responsive systems to foster trust, strengthen family-school partnerships, and ensure that Latine families receive the comprehensive support necessary for meaningful engagement.